Goal Set. Goal Achieved: Montecito Half Marathon

What an incredible experience — I finished the Montecito-Summerland Half Marathon on Saturday in just under 2 hours! On Saturday, my great friend and fellow Team GSF SB Marathon runner, Mike Paskin, our friend, Steve Fergusson, my awesome trainer, Mike Claytor, and I conquered the first annual Montecito-Summerland Half Marathon. For me, it was my […]

Team GSF SB Marathon: Hills, interval training, and the Montecito Half Marathon

Well, well, well… time really is flying around here. It seems like yesterday I did my first training run and made the decision to run a marathon. And now we’re only a little more than 4 months out from the Santa Barbara International Marathon in November 2011. Yikes! When I decided to train for the […]

Team GSF SB Marathon: 20 Plus Runners and a Few Things I’ve Learned

We’re a little under five-and-a-half months out from the Santa Barbara Marathon and I’m feeling great. I’m loving my training and it’s become a normal part of my weekly routine — two strengthening workouts followed by thirty minute runs and one one hour run. The intensity is definitely picking up but I can feel the […]

I’m Running the Santa Barbara Marathon

I’ve always wanted to run a marathon — it’s one of those goals I planned to “one day” check off my list. But, to be honest, the last time I ran in any way was home from my office the day Gwendolyn was diagnosed with SMA. That was over three years ago. She was just […]

Continuing the SMA Charge on Capitol Hill

Get ready — a NEW SMA bill is on it’s way and we will need YOUR help. We’ve always believed that having a consistent, coordinated SMA voice on Capitol Hill is a key component to continuing to move SMA awareness, funding, research, and advocacy forward at the highest level. We’ve been big supporters of the SMA […]

Check out SMAHeadlines.com | SMA news in one place.

A few months ago the Gwendolyn Strong Foundation (GSF) launched an extremely simple project. It’s called SMAHeadlines.com and that’s exactly what it is. Spinal muscular atrophy (SMA) news from across the globe organized and shared from one website. For such a “little known disease”, we’ve always been shocked at the number of SMA articles that […]

Why We Chose A Pre-Clinical Model As Our Next Research Focus

Taking a step back. Looking at the big picture. Making sure our direction is sensible and methodical. That is why we chose a pre-clinical model as our next research focus. Over the past two years, the Gwendolyn Strong Foundation (GSF) has taken a laser-guided missile approach to funding research, primarily funding specific portions of two […]

RoundUpForSMA.com | Possibly the Simplest Way on the Planet to Support SMA

Okay folks… we think this is quite possibly the simplest way on the planet to support an end to Spinal Muscular Atrophy. It’s called RoundUpForSMA.com and it’s a fundraising partnership between the Gwendolyn Strong Foundation and SwipeGood. Here’s how it works… Go to RoundUpForSMA.com Sign up your credit or debit card Make your credit or […]

2011 King of the Hammers – Go Uncle Richard and Aunt Kristen!

Driving to END SMA…one rock at a time! There’s this incredible off-road desert race called the King of the Hammers held in Johnson Valley, CA. If you are into this kind of thing, you know exactly what I am talking about. It’s crazy. It’s grueling. It’s incredibly difficult to qualify for. 100 huge, custom beasts […]

“$200K For SMA” Goal Surpassed! GSF Signs On To Continue Funding Groundbreaking SMA Reasearch

We did it! That’s right, we ALL DID IT! In just six months since launching the “$200K for SMA” fundraising challenge, the Gwendolyn Strong Foundation and FightSMA — and all of our wonderful supporters — not only raised $200,000 for gene therapy research — we blew it out of the water! With the help of […]