Birthday Part 2: A Cowgirl Party

Yee-haw! Gwendolyn decided she wanted to have a cowgirl birthday party to celebrate turning F.O.U.R. Okay, that was pretty easy to guess since our house is practically a stable with her horse collection. With everything that happened with Gwendolyn’s health this summer, we didn’t even start getting organized until a few weeks before the shindig. But […]

Continuing the SMA Charge on Capitol Hill

Get ready — a NEW SMA bill is on it’s way and we will need YOUR help. We’ve always believed that having a consistent, coordinated SMA voice on Capitol Hill is a key component to continuing to move SMA awareness, funding, research, and advocacy forward at the highest level. We’ve been big supporters of the SMA […]

Gwendolyn’s Story on the Floor of Congress Yesterday

Over the years we’ve been pretty outspoken about our experience with health insurance and our health insurance provider, Health Net (see past posts here, here, here, here, and here), and our thoughts on the health care reform legislation that was passed in 2010 (see the article on our family in the New York Times and our post here). With the swearing in […]

Vote to Help SMA Research

Another day. Another contest. We aren’t running this one this time. Whew. But our friends over at Stop SMA are and they have a real chance to direct $250,000 to SMA research! Yep, $250k for SMA research!!! It’s simple. It’s easy. And anyone with an email address can do it. Four clicks and you are […]

Sedona, Arizona

View Larger Map Trip stats: * Mileage this segment: Las Vegas, NV to Sedona, AZ —> 276 miles* Cumulative mileage: 643 miles* Cumulative gallons of diesel gas: 113 gallons Sedona, Arizona. What a truly special town nestled amongst a spectacular, unique setting. We were wowed on our drive in from Las Vegas, NV, as we […]

Be the Match Marrowthon

A couple of months ago, Bill and I participated in our local Be the Match Marrow Registry drive. It was so, so easy to register (a little cheek swab) and Bill and I left feeling so glad to be part of something so important. I can only imagine what it would be like if Gwendolyn’s […]

Happy Anniversary!

Six years ago today, Bill and I said our “I do’s.” Six years ago, on June 7th, we celebrated the start of our marriage. It was a beautiful day and seems like just yesterday. Six years goes by quickly…

Jesusita Fire Update

This is a photo our neighbor took as we were both packing up and evacuating on Wednesday. The fire is spreading and has now impacted everyone we know — either they are evacuated or are housing an evacuated family. We are very worried about our friends and our community. Please send the East Coast rain […]