Stander!

For the last several months at therapy, Gwendolyn has been working hard on practicing in her power chair and perfecting the setup and controls to give her the best opportunity to drive and drive and drive and drive and drive. And while she looooooves her power chair, the last couple of weeks Gwendolyn has been […]

New Awesome SMA Resource: InsideSMA

The Gooden family has been hard at work creating a really incredible resource for SMA families — InsideSMA. I always love when families come up with something new and innovative to help others!!! The tips, tricks, and advice on here are really wonderful. Everything from how to prepare for and manage mucus plugs to strategies […]

It Arrived!!! Let the Adventures Begin!

Yep…it’s an extra special, super duper, really big, awesome, stupendous surprise… just in time for Christmas! Gwendolyn’s POWER CHAIR ARRIVED! EEEEEEEEEEEE! Yipee! Yipee! We are pretty darn excited around here…but most importantly, Gwendolyn is OVER. THE. MOON!!! Yesterday all three of us went to Gwendolyn’s therapy appointment with fingers crossed that her chair would really […]

Little Star Love

Gwendolyn is in love — L.O.V.E.  His name is Little Star and he is her mini horse best friend!!! Little Star moved to a new home over by the beach about three weeks ago and we have been going out to see him every chance we get. The best part is Gwendolyn completely controls everything. […]

Therapy and G’s Awesome Therapists

Gwendolyn has therapy every day — on some days twice. The therapy ranges from stretching to play and sometimes a combination of the two, but all of it allows Gwendolyn to experience things she could not without the help of some very special people. Therapy for SMA children is a challenge. It’s not rehabilitation — […]

Little Star

Gwendolyn has a pony — two ponies!!! Okay, they aren’t really her ponies, but this darling pair are the closest she will ever come. And we are in love! Little Star and Silver Star are our friend Diane’s new mini horses. Little Star is the sweetest, gentlest, teeny tiny pony you have ever met. He is […]

Horse Therapy

As you know Gwendolyn adores mini horses. She just lights up whenever she is around them and clearly gets so much from seeing them. But Quicksilver, the mini horse breeder, is not super near us, which got me thinking about the possibility of being involved with a horse therapy non-profit called Hearts Therapeutic located here in […]

"Walking"

Yesterday was a first…well, at least in this form. Gwendolyn “walked.” By walking I mean she was in the stander and we rolled it through the therapy unit. Simple enough for most folks, but this is the first time Gwendolyn has ever moved completely forward while standing. She has been using the stander successfully for […]

Great AFO Socks, SmartKnitKIDS seamless sensitivity socks

Finding socks that work well with Gwendolyn’s AFOs has been challenging. Most children’s socks have raised bumps, lines, or patterns and are too big or too small or too high or too short. And it’s not like Nike is manufacturing Dri-FIT technology socks for toddlers, so the fabric most children’s socks are made of doesn’t […]

Gwendolyn's Wheels (watch your toes…)

Gwendolyn has been practicing and practicing and practicing in her power chair and she’s starting to really get the hang of it. She loves it — and that’s absolutely the most important thing. Her face beams when she is in her chair and she loves “finding” Daddy and Mommy and Gramma. Watching her figure out […]