Gwendolyn Tests Tobii and an Act of Kindness Leaves Us Speechless

We are speechless. Completely without words. Doors are opening for our little girl and because of an incredible act of kindness, they are opening even faster. Yesterday we had a trial for the Tobii Eye Gaze Communication Device. This “computer” is able to detect and follow Gwendolyn’s eyes and how she moves them. Using her […]

Good Things For Gwendolyn: Being Like Her Friends – Reading, Climbing and Sharing

It has been an exciting week at school this week. Gwendolyn “climbed” a tree and this is now her favorite thing to do. She saw all the other big girls in the tree and looked at me with an expression that said, Mom, we are doing this. It took some navigating, but seeing her so […]

Power Chair — Get the G-Team Van

The power chair is being ordered!!! Hazzah! After almost a year of preparation, trial and error, Jerry-rigging, tweaking, and lots of practice, practice, and more practice, we have found a system that works for Gwendolyn and she is ready to hit the road. Gwendolyn’s disabilities are such that we can’t simply go into the wheelchair […]

SMA iPad Giveaway Winner

And the winner is….. Sydney — 5 years old, SMA Type 1, from Michigan Chessa — 14 years old, SMA Type 2, from Georgia Yes, that’s right TWO people won the Apple iPad Giveaway! We were so moved by the more than 100 entries that we simply couldn’t stop at one iPad. Congratulations Sydney and […]

Calling All SMA Families — Win a FREE Apple iPad!

The Strong family, together with Milverstead Publishing, is super excited to be giving away an Apple iPad to one lucky person on SMA Space. Yes, that’s right. One family impacted by spinal muscular atrophy could win a FREE Apple iPad! Doesn’t cost a thing. No strings attached. You just submit an entry. That’s it. It […]

Gwendolyn Playing On Her iPod Touch; So Many Possibilities!

Gwendolyn’s big Christmas present this year was an iPod Touch. We think the super-sensitive “touch” screen and the thousands of fun applications through the App Store will be great for her to play independently — something that we’re always struggling with given her challenges. We also think the assistive communication applications may help Gwendolyn communicate […]

Joe Barnick, thanks for the inspiration!

This is such a small, small, tiny world in so many ways. Victoria and I have been researching and thinking through ways to use technology to help Gwendolyn communicate. There is a really cool application that we’ve been looking at, Proloquo2Go, that brings augmentative and alternative communication (AAC) to the iPhone/iTouch devices. It looks like […]

VIDEO: Gwendolyn's Computer Time

Last week Gwendolyn had a technology assessment with the Central Coast Assistive Technology Center (CCATC). Given Gwendolyn’s thirst for new experiences, we are hopeful that technology will unlock a wealth of independent learning, playing, and communicating opportunities for her — she’s definitely craving them… We tested a bunch of switches and games with CCATC and […]