Gwendolyn Becomes Honorary Vaquero | Game This Saturday

What a positive night. Yesterday evening Gwendolyn became an “Honorary Vaquero Captain” at Santa Barbara City College’s football practice. The big game and her “official” Vaquero Captain duties will be this Saturday at 5:45 pm, but the coaches, team and cheer squad wanted to meet her ahead of time and we are so glad they […]

SBCC Supports GSF and Makes Gwendolyn Honorary Vaquero Captain

Are you ready for some football? Come on out Saturday, September 24th at 5:30 to support the Gwendolyn Strong Foundation and cheer on Miss G as she becomes the Honorary Vaquero Captain. We are very excited and honored to have been selected as one of five charities the Santa Barbara City College Football Program is […]

Santa Barbara Businesses Support theGSF

Santa Barbara and its residents have been nothing but embracing since Gwendolyn’s diagnosis with SMA. The support we have received goes well beyond our immediate friends and connections in the community. (And our immediate friends and connections have been awesomely A-mazing!) Friends told friends who in turn told friends who in turn got involved and […]

This is SMA. And this is what incredible looks like.

We asked families impacted by SMA to submit a photo and share something they would want others to know about them/their child. And this is what we received. Speechless. Simply speechless. These families and their stories represent what this disease really is. SMA is far more than its brutal statistics. It is families. It is […]

City of Santa Barbara Again Declares August SMA Awareness Month

Earlier this week the City of Santa Barbara officially declared August as SMA Awareness Month for the third year in a row. The City of Santa Barbara has consistently been supportive of our efforts to end SMA and Mayor Helene Schneider has always been extremely complimentary and enthusiastic about what we are doing. While this […]

Cupcakes for Amanda

Awesome things are happening around the globe for SMA Awareness Month and some are dee-lish. Sweet Amanda Cardoze just celebrated her 1st birthday yesterday. At just one-year-old she is already a warrior — a big smiling, pool-loving snuggler. Amanda has SMA. For the entire month of August Amanda is being honored with a special cupcake […]

Do Something. Make a Difference. August is SMA Awareness Month!

August is SMA awareness month and since you are reading this you probably already have a general idea about this brutal disease and why increasing awareness of it is so necessary. Over the next few weeks we will be asking things of you. We will be challenging you to get more involved. We will be […]

State of California Declares EVERY August as SMA Awareness Month!

Awesome news! The State of California has once again declared August as SMA Awareness Month. You may recall the declaration last year, but there is much more to this year’s declaration. The proclamation doesn’t just pertain to this August. Nope. S.C.R. 43, introduced by our awesome state senator, Senator Tony Strickland, extends in perpetuity — […]

Advocating for the Affordable Care Act: Gwendolyn’s Story (Video)

Over the last several years, we haven’t shied away from lending our voices to advocate on behalf of injustices we have faced. Most of these injustices, if not all, are sides to issues that we may have never become aware of had it not been for the life-altering reality of Gwendolyn’s Spinal Muscular Atrophy diagnosis. […]

Strawberry Festival Goodness

The Strawberry Festival in Troy, Ohio was just a few weeks ago and it was amazing! The truly remarkable Penny and Melissa, who own the fabulous children’s accessory store Beb-e-ssentials, hosted a booth at the festival and made it their mission to increase SMA awareness. You may remember the awesomeness of last year’s Gwennie Duck and boy […]