State of California Declares EVERY August as SMA Awareness Month!

Awesome news! The State of California has once again declared August as SMA Awareness Month. You may recall the declaration last year, but there is much more to this year’s declaration. The proclamation doesn’t just pertain to this August. Nope. S.C.R. 43, introduced by our awesome state senator, Senator Tony Strickland, extends in perpetuity — […]

Advocating for the Affordable Care Act: Gwendolyn’s Story (Video)

Over the last several years, we haven’t shied away from lending our voices to advocate on behalf of injustices we have faced. Most of these injustices, if not all, are sides to issues that we may have never become aware of had it not been for the life-altering reality of Gwendolyn’s Spinal Muscular Atrophy diagnosis. […]

Continuing the SMA Charge on Capitol Hill

Get ready — a NEW SMA bill is on it’s way and we will need YOUR help. We’ve always believed that having a consistent, coordinated SMA voice on Capitol Hill is a key component to continuing to move SMA awareness, funding, research, and advocacy forward at the highest level. We’ve been big supporters of the SMA […]