Vanille Cupcake Boutique Raises $1,125 for theGSF in Honor of Amanda Cardoze

Cupcakes are yummy delicious treats. But did you know they also help end SMA? Vanille Cupcake Boutique in Panama City, Panama opened up their gorgeous bakery to fundraise for theGSF’s mission in honor of sweet Amanda Cardoze. For the entire month of August (SMA Awareness Month), Vanille sold a special “SMA Cupcake” with 50% of […]

Join Team Callie In The North Carolina Marathon

Team Callie is gearing up for the North Carolina Marathon and we are so proud of them. In honor of adorable, sweet, precocious Callie Golden, her father, Nathan, is racing on November 19th with a team of 20 by his side. Team Callie will be tackling the full, half and relay throughout High Point — […]

Birthday Part 3: The Actual Day and Lion King 3D

This is the last birthday celebration post. We had so much fun that it was just too much to cram into one post; hope you aren’t tired of the big 4 hullabaloo. To be honest it has been nice for us to reflect on this milestone and truly appreciate all the good things for Gwendolyn […]

Sweet Revenge Raises $2,400 for the GSF in Memory of Ciara Van De Loo

Sweet Revenge: A Benefit in Memory of Ciara Rose Van De Loo was a cupcake, wine and beer tasting held at the Gnarly Vine in New Rochelle, New York — and it was an incredible night for many reasons. The amazing Van De Loo family turned what should have been their daughter Ciara’s 1st birthday […]

Birthday Part 2: A Cowgirl Party

Yee-haw! Gwendolyn decided she wanted to have a cowgirl birthday party to celebrate turning F.O.U.R. Okay, that was pretty easy to guess since our house is practically a stable with her horse collection. With everything that happened with Gwendolyn’s health this summer, we didn’t even start getting organized until a few weeks before the shindig. But […]

Micah March 5K October 22 in Ojai

The third annual Micah March is coming up on October 22nd in Ojai, California and you don’t want to miss the fun. This 5K walk meanders through a tree-lined trail, finishing with a concert, silent auction, family fun, and dinner catered by Don Lalo’s Mexican Restaurant. Last year, Micah’s March had 150 registered walkers and […]

Birthday Hullaballoo Part 1: The Cousins Arrived

Wow! Wow! Wow! Thank you all so very much for your thoughtful comments, facebook messages, cards and gifts. Gwendolyn is certainly a very lucky little girl and we are so thrilled to celebrate this special and big milestone with all of you. I have to say that this birthday was pretty darn awesome. She really […]

Beb-e-ssentials Birthday Bash Special Offer & Giveaway!

In honor of Gwendolyn’s 4th birthday and to celebrate all those with SMA, the awesomely amazing women at Beb-e-ssentials are doing awesomely amazing things for YOU! For the entire month of October, they are offering a “Buy one beanie, get one FREE” special. You’ve seen these darling beanies from several of Gwendolyn’s photo shoots and […]

Miss G is 4!

My dearest darling Gwendolyn, Today you are four years old and I am so proud of you. At four you are such an incredible little girl — so certain of yourself, so eager to live life to its fullest, so patient when the world isn’t always ready for you. And I am so proud of […]

Fight For Owen Bowling Night

If you’ve been reading this blog for long, then you already know about our love for the amazing Shuler family and their beautiful baby boy, Owen. Owen Vincent Shuler was born March 7, 2008. Just like Gwendolyn he was diagnosed with SMA Type 1. And just like our family the Shulers immediately sought out SMA […]