Good Things For Gwendolyn: A Wizard Promise Fullfilled

Gwendolyn is still having a tough time. She hasn’t bounced back the way she usually does after antibiotics and we are feeling a bit on edge (well, we are always on edge, but more so). We are having more tests done to try to get to the bottom of it all, but she just isn’t […]

Acts of Kindness: A Wizard of Oz Surprise in Memory of Chloe

Last Friday Gwendolyn received a surprise package in the mail. I already told you about the special Wizard of Oz tea set and boy does she love this. But the gifts also included a set of Wizard of Oz dolls and a Wizard of Oz sticker book. Now to say this was a hit is […]

Acts of Kindness: The Walker Family

Wow. Simply blown away. Ann and Jim Walker and their darling twins Will and Lily are determined to raise $5,000 for theGSF this year. They decided this all on their own and are half way to their goal. When Will and Lily turned two earlier this year they asked for donations to theGSF in lieu […]

Strawberry Festival Goodness

The Strawberry Festival in Troy, Ohio was just a few weeks ago and it was amazing! The truly remarkable Penny and Melissa, who own the fabulous children’s accessory store Beb-e-ssentials, hosted a booth at the festival and made it their mission to increase SMA awareness. You may remember the awesomeness of last year’s Gwennie Duck and boy […]

Gwendolyn Tests Tobii and an Act of Kindness Leaves Us Speechless

We are speechless. Completely without words. Doors are opening for our little girl and because of an incredible act of kindness, they are opening even faster. Yesterday we had a trial for the Tobii Eye Gaze Communication Device. This “computer” is able to detect and follow Gwendolyn’s eyes and how she moves them. Using her […]

Little Star and Gwendolyn in Santa Barbara News-Press

You all know that Little Star is Gwendolyn’s animal BFF. She loves him so much and he loves her. I’ve written about them here, here, and here. We are so lucky that Diane (Little Star’s Mommy) is such a dear friend. She always includes us and she always, always makes Gwendolyn feel special. We met […]

Hope Calender: Last Call and Finishing Up

The Hope Calendar has been such a success! People love the beautiful images and have been so excited by the response — making them a cinch to sell. We are now closing out this fantastic fundraiser and so it is the official LAST CALL to order your own. Click here to buy. And for all […]

Birthday Donations/Children Helping Children Part 2

We continue to be incredibly humbled by the dozens of people who have chosen to turn their special birthday into a fundraising opportunity for GSF. Some have done big things for milestone birthdays (like Julie’s 40th and Mia’s 30th), hosting parties at restaurants or bars and asking all their friends to donate to GSF instead […]

Amazing Employers Helping to End SMA: Nazdar

Kristin and Tony Burks have incredible employers — as in dream companies! Not only is Tony’s boss climbing the highest peak in the Western and Southern Hemispheres to raise awareness and funding for SMA research, but Kristin’s company, Nazdar, has consistently gone above and beyond as well. Their latest amazingness comes just in time for […]

Snow At The Santa Barbara Zoo

We had an AWESOME day yesterday! Awesome! And we needed it. The Santa Barbara Zoo hosted their annual “Snow Leopard Festival” (you may remember we went last year). The Santa Barbara Zoo actually trucks in piles and piles of ice to create snow for a one day really special event. They build a sledding track, […]