Irvine, California | An Evening with Dr. Hans Keirstead

If you live near Irvine, California you don’t want to miss this incredible opportunity to meet and learn from a pioneer in stem cell research! Our awesome friends at The Roman Reed Foundation are hosting “An Evening with Dr. Hans Keirstead” at University of California, Irvine on Wednesday, October 26, 2011. Learn about Dr. Keirstead’s […]

Team GSF SB Marathon: My X-Factor and the Final Stretch.

Hard to believe, but nine months has come and gone since I set out to do my first training run for the Santa Barbara Marathon while on a trip with Victoria and Gwendolyn to Monterey, California. And it’s been¬†five months since I decided to go for it and we officially launched our Team GSF SB […]

Morongo Casino Donates $20,000 to the GSF

We are humbled and honored to have been selected as one of only three charities to benefit from the 15th Annual Morongo Charity Golf Tournament put on by the Morongo Casino, Resort, and Spa in Cabazon, California. And we are simply speechless by their incredible generosity. Morongo donated $20,000 to the Gwendolyn Strong Foundation to […]

Health Net Health Insurance Premium Increase: 18% this year, 136% over last 4

Health Net — our health insurance provider — is at it again this year raising our health insurance premiums at ridiculous rates. This year it was a clean 18%. Yup, 18%. That number is crazy on its own, but what % do you think Health Net has raised our health insurance premiums over the last […]

Team GSF SB Marathon: Help Us Reach Our $26,200 Team Fundraising Goal

Thirty Team GSF runners are challenging and pushing themselves for the SMA cause in the Santa Barbara International Marathon on November 12, 2011. 30 competitors! And on top of the immense personal physical commitment they’ve made, they have collectively set a team fundraising goal of $26,200 for the Gwendolyn Strong Foundation (GSF) to help end […]

GIVEAWAY: And The Winners Are…

Firstly, we want to commend all of the applicants for entering GSF’s SMA Awareness Month Giveaway. You have taken a step to gain knowledge that many don’t even know exists. You have power in knowing that this information is important…can be life changing. We want to thank Counsyl for their partnership and for donating the […]

Counsyl Has Generously Donated Free Genetic Tests to Help Raise Awareness of SMA

At the Gwendolyn Strong Foundation, we want as many people as possible to know that 1 in 40 people unknowingly carry a severe mutation in the SMA gene. Getting tested before pregnancy is one of the best ways to make sure that your child does not fall victim to a possibly lethal genetic disease. And […]

Team GSF SB Marathon: Injury Frustration and Perspective

I’ve been nursing a nasty and painful injury since finishing the Montecito-Summerland Half Marathon two weeks ago. I’m not going to lie, it’s been pretty frustrating. It’s my left leg and it seems to be a nice mix of a shin splint and plantar fasciitis — both pretty common running injuries. I spent four days […]

Advocating for the Affordable Care Act: Gwendolyn’s Story (Video)

Over the last several years, we haven’t shied away from lending our voices to advocate on behalf of injustices we have faced. Most of these injustices, if not all, are sides to issues that we may have never become aware of had it not been for the life-altering reality of Gwendolyn’s Spinal Muscular Atrophy diagnosis. […]

Goal Set. Goal Achieved: Montecito Half Marathon

What an incredible experience — I finished the Montecito-Summerland Half Marathon on Saturday in just under 2 hours! On Saturday, my great friend and fellow Team GSF SB Marathon runner, Mike Paskin, our friend, Steve Fergusson, my awesome trainer, Mike Claytor, and I conquered the first annual Montecito-Summerland Half Marathon. For me, it was my […]