In our personal experience, getting your arms around life-critical machines and supplies can be daunting in the process of dealing with a spinal muscular atrophy diagnosis. What will we need? Where will get all this stuff? What do others use? How are we going to figure all of this out? We remember these questions quite vividly and it was scary and frustrating — to say the least. So, we put together a document summarizing Gwendolyn’s machines and supplies that will hopefully help others:
As always, this is just a summary from our experience and philosophy of care with Gwendolyn and is not intended to be an all inclusive guide for all families. We highly recommend that all SMA families join SMAspace.com — an incredible online support community exclusively for those impacted by SMA.
If we can help with anything, please don’t hesitate to email us at:
Bill Strong — Bill@GwendolynStrongFoundation.org
Victoria Strong — Victoria@GwendolynStrongFoundation.org