Spinal Muscular Atrophy Machines and Supplies

In our personal experience, getting your arms around life-critical machines and supplies can be daunting in the process of dealing with a spinal muscular atrophy diagnosis. What will we need? Where will get all this stuff? What do others use? How are we going to figure all of this out? We remember these questions quite vividly and it was scary and frustrating — to say the least. So, we put together a document summarizing Gwendolyn’s machines and supplies that will hopefully help others:

Click HERE to download the document or you can use or pass on the following link —> http://bit.ly/SMAMachinesAndSupplies

As always, this is just a summary from our experience and philosophy of care with Gwendolyn and is not intended to be an all inclusive guide for all families. We highly recommend that all SMA families join SMAspace.com — an incredible online support community exclusively for those impacted by SMA.

If we can help with anything, please don’t hesitate to email us at:

Bill Strong — Bill@GwendolynStrongFoundation.org

Victoria Strong — Victoria@GwendolynStrongFoundation.org

About Bill Strong

Passionately dedicated to raising awareness of Spinal Muscular Atrophy (SMA), the leading genetic killer of young children, and accelerating promising research towards a cure. Together we will end SMA: one person and one dollar at a time.

Comments

  1. That link should be helpful to many–even the best local doctors aren’t experts on SMA, and if they’re worth even their copays they should be open to family input. This is an example of social networking at it’s most valuable! :)

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